Kids Get Arthritis Too!

Kids Get Arthritis Too!

Saturday, January 3, 2015

Starting the New Year with JRA.

Most recently was New Years Eve which as we know turns into New Years Day. Now I was sitting art my cousins house in Virginia and playing Just Dance 2015 and having some fun when we realized that it was about 10:30 at night. The two youngest went to bed as we expected them two but me and my other cousin stayed up to watch the ball drop in Times Square. Me and my younger cousin starting making as we called them "kiddie drinks" with tonic water and juice. It was a lot of fun and I wasn't having much pain until around 11 at night. So I took a Naproxen. As I was sitting there talking with the about 5 people in the house still awake and talking Naproxen I realized that I wasn't going to miss 2014 at all. Everybody was talking about how much they were going to miss 2014 and all of the good things that had happened to them that year, and I was just sitting there like...ok..... I have had a pretty bad year and honestly I would be perfectly fine if I could just erase the year 2014 from my life completely. My dad asked e what I meant and then I realized that pretty much everybody had forgotten what had happened to me this past year. I was diagnosed with an ankle disease and had to get a surgery, broke my back and screwed up my hips in a car accident, and then was diagnosed with juvenile rheumatoid arthritis. Not one of best years. Except for the fact that I'm really attractive. LOL JK. But anyways when the ball dropped I was relieved cause I realized that I was done with that terrible and that I got a new start and I was able to restart and move forward. Don't get me wrong I am totally looking forward to 2015 and there were some good memories in 2014 but I plan to make 2015 incredible.

Accepting that You have JRA

First of All if you haven't read my about me section I suggest you read that so you know a little about me. Now if you have read my section you no that I am 14 years old and that I was diagnosed with Juvenile Rheumatoid Arthritis in the summer of 2014. This summer.
I think one of the hardest things to do when you first get diagnosed or even really when you are dealing with a disease such as rheumatoid arthritis is the fact that you have to keep your head up in order to make your self feel better. You might ask how could having a good thought of mind make one feel better overall when dealing with a disease like this? Well, stress. One of the things that provokes this disease, not causes, but provokes this disease is the amount of stress that is going on in your life, and OI can voucher that when I started going to school after the summer my stress levels, and my pain levels sky rocketed. Now you might be questioning how this has to tie into dealing with and accepting the fact that you have RA. Here's is the answer and it is a lot simpler said than done. The sooner you are able to accept the fact that you have RA and the sooner you start reducing your stress and managing your pain, the less pain you will be in. And overall you will be more healthy.
Getting to the point that is accepting the fact that you have RA is a lot easier said then done. Trust me I have been down this road before, and in fact I still am going down this road, I still am finding ways to manage my pain and just accept what happened to me and find a way to deal with it. I think the first thing to remember is the fact that you are not alone. (especially you adults) All over the world there are people that are effected by this disease, and all over the world there are people who are going through what you are going through and trust me they can provide you with some support. So therefor the first thing I would suggest you do is go and join a support group whether it be a in person group or what I have even done is join support groups online and you re able to see just how similar people are too you and it does really help.
The second thing I think that I can say o you is find a psychiatrist to talk to.  Now I know what you are probably thinking, I don't need help I'm fine, that what I though and then I realized that I wasn't. There is a lot of grieving that takes place with this disease I wouldn't be surprised if you had to give up some of your activities that you used to loved to do. I did, like running. So talking about all of this and what is happening can really make you feel better.
Also talk to other about this and what is going on with their RA. That's why I ask you how old are you? When were you diagnosed? and What tips do you have?
 

Wednesday, December 24, 2014

Happy Holidays and Merry Christmas!!!

Happy Holiday's everybody! I hope you all have a nice time with your family, and friends and are able to enjoy a flare and pain free holiday season!!! Remember to Follow!!!! Again Merry Christmas and Happy Holidays!

Sunday, December 21, 2014

Sorry

Sorry I haven't been posting lately there was some confusion with a lawyer, involving personal issues. I will e starting to post daily.

Sunday, November 30, 2014

400 Page Views!!

I'm so excited that I've made it this far, and while I wish for this blog to continue to grow and eventually turn into something bigger I am excited that I've been able to help and reach out to so many people thus far!!!

Saturday, November 29, 2014

Taking Control of my Arthritis

Today was an especially rough day on me. My family wanted to go out and go walk around at this thing where I live called Dickens Christmas. Its where people dress up like the people from Dickens time and walk around and talk all old and stuff... you get the point. Well anyways what was supposed to be a hour long walk around later turned into 5 hours of walking around and standing... It was terrible, and my pain killers were at home.

When I got home I was just totally beat, I had absolutely no energy left in my system, so I went straight to be and laid down with the heated blanket on, and with my pain killers. Well finally I woke up and what did I realize... it was injection day... fun... so I had my dad take the shot out of the fridge to sit out because at this point I was still too sore and stiff to even, walk. Finally I had to take my shot after a half an hour of it sitting out, and of course I got the  jitters and was having trouble just taking it. Now when I was doing this and freaking out I realized that when I first got diagnosed with my Juvenile Arthritis, I went on vacation the next week and I had bought a sailors bracelet, and I made a vow that I wouldn't take it off until every thing was over, and as I sat there I realized that, that bracelet was a way for me to tell myself that there was nothing I could do about this and that I had to just sit there and wait it out. But that was wrong, I could do something about it, stop letting it take control of me and take control of it. So tonight not only did that give me the courage to take my shot, but I cut off my bracelet and threw it out because I realized this is over cause I AM TAKING CONTROL OF MY ARTHRITIS!

Juvenile Arthritis Vlog?

So recently I've been searching on YouTube for a vlog or a channel of somebody that keeps an up to date video blog about their life with Juvenile Arthritis and some other tips. I think what I was looking for something similar to the vlog that was of Talia Joy, and I realized that there wasn't any vlogs like this and that they were either one vlog, or they simply weren't there. So I was wondering what you guys would think of me starting a video blog???? Please comment with your replies!!!