Sailing with Juvenile Arthritis! Something to do to get around the aches and pain of Juvenile Arthritis!

If you are looking for something that you can do with your juvenile arthritis without feeling sore or being in pain afterwards the something I would look into is sailing! It is a very great sport to play that is easy on the joints plus its really easy to learn! My brother bought a small sunfish sailboat to use for sailing and it only cost him 450 off of craigslist! Its a single sail and very easy to learn on and a great fun time, so if you or somebody else with juvenile arthritis or really and arthritis is looking for something to do look up sailing lessons! Who knows maybe you will become an Olympic sailor!

Sorry I haven't been posting

Sorry guys I've been really busy with family. I'll be back to refusal posting tomorrow

Tips for your injections/infusions for your JA

Ok so some of you guys might not have to take I injections/infusions for treatments but for the ones of you that do here are some tips to help you get through it!

 

1. Calm down a relax before you take the shot
2. have somebody give you the shot it helps calm you down'
3. take your time
4. make sure you are completely calm before you take it being stressed will just make it worse
5. Relax your muscle so that the needle doesn't hurt as much when it goes in
6. Ice the area before you take the shot cause it will make your injection site feel numb
7. Take deep breaths in order to calm your self and not freak out
8. Have something to squeeze or hold onto during the shot
9. Try not to look it might just make it worse
10. I recommend trying to get an auto injector it makes it a lot easier.

Medicines for your Juvenile Arthritis!

Personally I am currently on Enbrel on weekly doses. Although there are multiple medication that you can take that will reduce your inflammation and it is very possible to put your Juvenile Arthritis into remission! Unfortunately as of right now there is no cure for Junior Arthritis but these medicines will help. For some people your arthritis might be mild enough to only need ibuprofen to be able to calm your flare up but the more severe you JIA, JRA... etc. may be the stronger your medicine will need to be. For example you might be prescribed naproxen by your doctor to see if that will reduce the inflammation personally naproxen helped a little bit but it did not reduce my pain completely only by about 50% now you could be the same as me or maybe it will work it all depends on your body and how your arthritis reacts to the medicine. Typically if Naproxen doesn't work your doctor will but you on infusion treatment or injections. In my case my doctor put me on Enbrel for a weekly does and so far it has been working wonders for me I have had very little or no pain or discomfort after only 2 weeks of taking it! There are other types of injectable medicines that your doctor could prescribe to you for example my doctor was talking about putting me on Humira which would've been a bi-weekly medicine injectable but since the arthritis was effecting my eyes she determined it wouldn't be necessary. The important thing is that these injectable medicines do lower your immune system so you have to be careful when taking them because you can get sick very easily but the thing is that these medicines can help so ask you doctor about them maybe and if you have been prescribed I will add some links down below were you can read up on the medicines.



Naproxen:

http://www.nlm.nih.gov/medlineplus/druginfo/meds/a681029.html

Enbrel:

http://www.enbrel.com/index.jspx

Humira:

https://www.humira.com/


If there are any other medicine I didn't put in this post please comment and I will update this page!

You Just found out that you have Juvenile Arthritis (JA)...

Ok so the first thing to do is to not panic... you are going to be fine and they world isn't going to end you will be able to do this and everything is going to be ok. I know it sucks trust me I've been there people telling you that something is wrong but you are going to learn to embrace your (JA) not fear it. Calm don and think listen to what the doctor has to say maybe they want you to start taking pills or maybe you even need to start taking injections or infusions, yes granted it might seem scary at first but once you get used to it you will want your injections/infusions/pills because they will make you feel better. I know the feeling of thinking that your life is over or that it is ruined but, you do have one advantage your are a brave, strong, courageous person and you can battle through this sure it might occasionally be unfair cause you cant do what the other kids can, and they might not get it but I know that all of you have the courage to get through this and one day WE will find a cure because WE WILL NOT GIVE UP!


LIST OF THINGS NOT TO DO:

1) Think irrationally
2) Freak out
3) Be rude to other people because you are upset
4) Let yourself sink into depression
5) Tell yourself that you have a terrible life
LIST OF THINGS TO DO:

1) Calm down and think straight
2) Listen to what the doctor has to say
3) Remember that your family and friends are there for you
4) Wake up and think of the amazing things in your life
5) Stay positive as much as you can cause it will help

My Story page is now updated!!!!

My story page is now updated with my journey of my JA how I found out and up till where I am now I am going to keep it like a log and post there about weekly so go check the my story page once a week!

Ok, so this is just a post to let you know if you are another person visiting my blog with JA, or even a relative of somebody with JA, just know that even though I am going through this too I will be here to answer any questions you have about JA or anything I will answer those questions in another post but until then I will just continue by posting daily or bi-daily about my experiences any tips to help you get through this the best you can!

DON'T give up!!!!

First of all knowing how I reacted when I found out that I had Juvenile Arthritis you are probably here because you are scared and you want and you need some answers... will my life ever be the same?, What if I never get better?, I'm scared what do I do? Honestly I still ask myself some of those questions myself but the important thing is that this will get better and you will be okay this is just a bump in the road and honestly it is going to put you better off in the long run. Yeah maybe it sucks cause your on restrictions but you have learned something and have something that nobody else your age has, and that is the courage and strength to get through this. I am a firm believer that everything happens to a person for a reason and it happened to me, to you because we are the strongest people on Earth and we are the ones that are going to be able to get through this no matter how hard because we are all fighters, and we will win this fight be cause WE WILL NOT GIVE UP!